Tell someone you know about this study.

If you have a friend or a family member who has a child diagnosed with MLD, enter his or her email address to send a link to this site. See the sample message listed here.

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Email message


I am writing to tell you about a clinical research study for infants and children six months to six years old with metachromatic leukodystrophy, or MLD. I thought you may be interested in checking it out. Here is a link to the site:

I hope you find this information helpful.

To help increase awareness of MLD, we encourage you to share these stats with your friends and family.

Worldwide, MLD occurs in 1 in 40,000 people, primarily children.
When both parents are carriers, their child has a 1 in 4 chance of having MLD.
Approximately 3,600 babies are born with MLD each year.
The three forms of MLD are: Late infantile, Juvenile, Adult
Late infantile MLD is usually detected before the age of 30 months.
Early symptoms of MLD include: Trouble walking, Impaired speech, Muscle weakness